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Data Owner:
The Seventh-day Adventist Church
The purpose of this study was to examine the unique needs and challenges facing the Latino Adventist community in the North American Division of the Seventh-day Adventist Church, which includes the United States, Hawaii, Canada, and Bermuda. "The major focus was on illuminating the nature, current trends, perspectives, and trends within the Adventist Latino community" (Hernandez, 1995, p.29). AVANCE was conducted as a follow-up study to Valuegenesis. The ARDA has added six additional variables to the original data set to enhance the users' experience on our site.
Data Owner:
Statistics Canada
The Labour Force Survey (LFS) is a monthly survey of Canadian households carried out by Statistics Canada. It was developed after the Second World War to satisfy a need for reliable and timely data on the labour market due to the massive labour market changes involved in the transition from a war to peace-time economy. The objectives of the LFS have been to divide the working-age population into three mutually exclusive labour force status categories (employed, unemployed, and not in the labour force) and to provide descriptive and explanatory data on each of these groups. With the release of the survey results only 10 days after the completion of data collection, the LFS estimates are the first of the major monthly economic data series to be released. The LFS is the source of Canada's official unemployment rates, including the rates used by Employment and Social Development Canada in the calculation of Employment Insurance (EI) eligibility and benefit criteria. Data from the survey also provide information on major labour market trends, such as shifts in employment across industrial sectors, hours worked and labour force participation.
Data Owner:
University Medical Center Utrecht
This study examined the factors influencing the decision-making of primary care physicians and nurses in providing self-management support to patients with chronic diseases. The aim of this research was to determine the relative importance of various patient factors in health professionals' decision-making.
Data Owner:
Curtin University
Objectives This study evaluated the uptake of Western Australian (WA) pharmacist vaccination services, the profiles of consumers being vaccinated and the facilitators and challenges experienced by pharmacy staff in the preparation, implementation and delivery of services. Design Mixed-methods methodology with both quantitative and qualitative data through surveys, pharmacy computer records and immuniser pharmacist interviews. Setting Community pharmacies in WA that provided pharmacist vaccination services between March and October 2015. Participants Immuniser pharmacists from 86 pharmacies completed baseline surveys and 78 completed exit surveys; computer records from 57 pharmacies; 25 immuniser pharmacists were interviewed. Main outcome measures Pharmacy and immuniser pharmacist profiles; pharmacist vaccination services provided and consumer profiles who accessed services. Results 15 621 influenza vaccinations were administered by immuniser pharmacists at 76 WA community pharmacies between March and October 2015. There were no major adverse events, and <1% of consumers experienced minor events which were appropriately managed. Between 12% and 17% of consumers were eligible to receive free influenza vaccinations under the National Immunisation Program but chose to have it at a pharmacy. A high percentage of vaccinations was delivered in rural and regional areas indicating that provision of pharmacist vaccination services facilitated access for rural and remote consumers. Immuniser pharmacists reported feeling confident in providing vaccination services and were of the opinion that services should be expanded to other vaccinations. Pharmacists also reported significant professional satisfaction in providing the service. All participating pharmacies intended to continue providing influenza vaccinations in 2016. Conclusions This initial evaluation of WA pharmacist vaccination services showed that vaccine delivery was safe. Convenience and accessibility were important aspects in usage of services. There is scope to expand pharmacist vaccination services to other vaccines and younger children; however, government funding to pharmacists needs to be considered.
Data Owner:
University of Miami
This data set was collected using Centiment survey panels, limited to English and Spanish speaking adults in the Miami-Dade metro area. Questions and scales covered a range of activities, values and attitudes associated with the marine estuary Biscayne Bay.
Data Owner:
University of Tennessee, Knoxville
The incorporation of data sharing into the research lifecycle is an important part of modern scholarly debate. In this study, the DataONE Usability and Assessment working group addresses two primary goals: To examine the current state of data sharing and reuse perceptions and practices among research scientists as they compare to the 2009/2010 baseline study, and to examine differences in practices and perceptions across age groups, geographic regions, and subject disciplines. We distributed surveys to a multinational sample of scientific researchers at two different time periods (October 2009 to July 2010 and October 2013 to March 2014) to observe current states of data sharing and to see what, if any, changes have occurred in the past 3–4 years. We also looked at differences across age, geographic, and discipline-based groups as they currently exist in the 2013/2014 survey. Results point to increased acceptance of and willingness to engage in data sharing, as well as an increase in actual data sharing behaviors. However, there is also increased perceived risk associated with data sharing, and specific barriers to data sharing persist. There are also differences across age groups, with younger respondents feeling more favorably toward data sharing and reuse, yet making less of their data available than older respondents. Geographic differences exist as well, which can in part be understood in terms of collectivist and individualist cultural differences. An examination of subject disciplines shows that the constraints and enablers of data sharing and reuse manifest differently across disciplines. Implications of these findings include the continued need to build infrastructure that promotes data sharing while recognizing the needs of different research communities. Moving into the future, organizations such as DataONE will continue to assess, monitor, educate, and provide the infrastructure necessary to support such complex grand science challenges.
Objectives: To estimate hepatitis B vaccination (HBVc) coverage, and knowledge and socio-demographic determinants of full-dose uptake in Federal Road Safety Corps (FRSC) members, Kaduna State, Nigeria in order to inform relevant targeted vaccination policies. Design: A cross-sectional survey of FRSC members, Kaduna Sector Command. Settings: Six randomly-selected Unit Commands under Kaduna Sector Command, Kaduna State, Nigeria. Participants: Pilot-tested structured self-administered questionnaire was administered to 341 participants aged 18 years and above with ≥6 months of service between 17th June and 22nd July, 2015. Excluded were FRSC members in Road Safety (RS) 1 Zonal Command headquarters as the Zonal Command includes other States beyond the study scope. Primary Outcome: HBVc status of participants categorized as ‘not vaccinated’ for uptake of <3 doses and ‘vaccinated’ for uptake of ≥3 doses. Analysis: Descriptive analysis estimated HBVc coverage while logistic regression ascertained associations. Results: Most participants were males, aged 30-39 years, with 3-10 years of service, and of Marshal cadre. HBVc coverage was 60.9% for ≥1 dose and 30.5% for ≥3 doses. Less than 47% of participants scored above the mean knowledge score for hepatitis B virus (HBV) and HBVc. Female sex (AOR 2.28, 95% CI 1.15-4.52, p<0.05), perceiving there to be an occupational risk of exposure to HBV (AOR 2.86, 95% CI 1.06-7.70, p<0.001), and increasing HBVc knowledge (AOR 2.68, 95% CI 1.83-3.92, p<0.001) were independent predictors of full-dose HBVc in FRSC members, Kaduna Sector Command. Conclusions: HBVc coverage and knowledge are poor among FRSC members, Kaduna Sector Command. Educational intervention, geared towards improving FRSC members’ knowledge of HBVc and perception of risk of occupational exposure to HBV, is recommended for these vulnerable public safety workers. Such enlightenment could be a cheap and easy way of improving HBVc coverage in the study population.
Data Owner:
University of Tennessee, Knoxville
Background: With data becoming a centerpiece of modern scientific discovery, data sharing by scientists is now a crucial element of scientific progress. This article aims to provide an in-depth examination of the practices and perceptions of data management, including data storage, data sharing, and data use and reuse by scientists around the world. Methods: The Usability and Assessment Working Group of DataONE, an NSF-funded environmental cyberinfrastructure project, distributed a survey to a multinational and multidisciplinary sample of scientific researchers in a two-waves approach in 2017-2018. We focused our analysis on examining the differences across age groups, sub-disciplines of science, and sectors of employment. Findings: Most respondents displayed what we describe as high and moderate risk data practices by storing their data on their personal computer, departmental servers or USB drives. Respondents appeared to be satisfied with short-term storage solutions; however, only half of them are satisfied with available mechanisms for storing data beyond the life of the process. Data sharing and data reuse were viewed positively: over 85% of respondents admitted they would be willing to share their data with others and said they would use data collected by others if it could be easily accessed. A vast majority of respondents felt that the lack of access to data generated by other researchers or institutions was a major impediment to progress in science at large, yet only about a half thought that it restricted their own ability to answer scientific questions. Although attitudes towards data sharing and data use and reuse are mostly positive, practice does not always support data storage, sharing, and future reuse. Assistance through data managers or data librarians, readily available data repositories for both long-term and short-term storage, and educational programs for both awareness and to help engender good data practices are clearly needed.
Data Owner:
St. Luke's Hospital
Objective Surgical informed consent is essential prior to caesarean section, but potentially compromised by insufficient communication. We assessed the association between a multi-component intervention and women's recollection of information pertaining to informed consent for caesarean section in a low-resource setting, thereby contributing to respectful maternity care. Design Pre-post implementation survey, conducted from January to June 2018, surveying women prior to discharge. Setting Rural 150-bed mission hospital in Southern Malawi. Participants A total of 160 postoperative women were included: 80 pre- and 80 post-implementation. Intervention Based on observed deficiencies and input from local stakeholders a multi-component intervention was developed, consisting of a standardised checklist, wall poster with a six-step guide and on-the-job communication training for health workers. Primary and secondary outcome measures Individual components of informed consent were: indication, explanation of procedure, common complications, implications for future pregnancies and verbal enquiry of consent, which were compared pre- and post-intervention using χ2 test. Generalized linear models were used to analyse incompleteness scores and recollection of the informed consent process. Results The proportion of women who recollected being informed about procedure-related risks increased from 25/80 to 47/80 (OR 3.13 [95% Confidence Interval 1.64-6.00]). Recollection of an explanation of the procedure changed from 44/80 to 55/80 (OR 1.80[0.94-3.44]), implications for future pregnancy from 25/80 to 47/80 (1.69[0.89-3.20]) and of consent enquiry from 67/80 to 73/80 (OR 2.02 [0.73-5.37]). After controlling for other variables, incompleteness scores post-intervention were 26% lower (Exp(β)=0.74; 95% CI 0.57 – 0.96). Recollection of common complications increased by 29% (Exp(β)=1.29; 95% CI 1.01 – 1.64). Recollection of the correct indication did not differ significantly. Conclusion Recollection of informed consent for caesarean section changed significantly in the post-intervention group. Obtaining informed consent for caesarean section is one of the essential components of respectful maternity care.
Data Owner:
Albert Einstein Israelite Hospital
In most emergency situations or severe illness, patients are unable to consent for clinical trial enrollment. In such circumstances, the decision about whether to participate in a scientific study or not is made by a legally designated representative.