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Data Owner:
University of Miami
This data set was collected using Centiment survey panels, limited to English and Spanish speaking adults in the Miami-Dade metro area. Questions and scales covered a range of activities, values and attitudes associated with the marine estuary Biscayne Bay.
Data Owner:
University of Tennessee, Knoxville
The incorporation of data sharing into the research lifecycle is an important part of modern scholarly debate. In this study, the DataONE Usability and Assessment working group addresses two primary goals: To examine the current state of data sharing and reuse perceptions and practices among research scientists as they compare to the 2009/2010 baseline study, and to examine differences in practices and perceptions across age groups, geographic regions, and subject disciplines. We distributed surveys to a multinational sample of scientific researchers at two different time periods (October 2009 to July 2010 and October 2013 to March 2014) to observe current states of data sharing and to see what, if any, changes have occurred in the past 3–4 years. We also looked at differences across age, geographic, and discipline-based groups as they currently exist in the 2013/2014 survey. Results point to increased acceptance of and willingness to engage in data sharing, as well as an increase in actual data sharing behaviors. However, there is also increased perceived risk associated with data sharing, and specific barriers to data sharing persist. There are also differences across age groups, with younger respondents feeling more favorably toward data sharing and reuse, yet making less of their data available than older respondents. Geographic differences exist as well, which can in part be understood in terms of collectivist and individualist cultural differences. An examination of subject disciplines shows that the constraints and enablers of data sharing and reuse manifest differently across disciplines. Implications of these findings include the continued need to build infrastructure that promotes data sharing while recognizing the needs of different research communities. Moving into the future, organizations such as DataONE will continue to assess, monitor, educate, and provide the infrastructure necessary to support such complex grand science challenges.
Objectives: To estimate hepatitis B vaccination (HBVc) coverage, and knowledge and socio-demographic determinants of full-dose uptake in Federal Road Safety Corps (FRSC) members, Kaduna State, Nigeria in order to inform relevant targeted vaccination policies. Design: A cross-sectional survey of FRSC members, Kaduna Sector Command. Settings: Six randomly-selected Unit Commands under Kaduna Sector Command, Kaduna State, Nigeria. Participants: Pilot-tested structured self-administered questionnaire was administered to 341 participants aged 18 years and above with ≥6 months of service between 17th June and 22nd July, 2015. Excluded were FRSC members in Road Safety (RS) 1 Zonal Command headquarters as the Zonal Command includes other States beyond the study scope. Primary Outcome: HBVc status of participants categorized as ‘not vaccinated’ for uptake of <3 doses and ‘vaccinated’ for uptake of ≥3 doses. Analysis: Descriptive analysis estimated HBVc coverage while logistic regression ascertained associations. Results: Most participants were males, aged 30-39 years, with 3-10 years of service, and of Marshal cadre. HBVc coverage was 60.9% for ≥1 dose and 30.5% for ≥3 doses. Less than 47% of participants scored above the mean knowledge score for hepatitis B virus (HBV) and HBVc. Female sex (AOR 2.28, 95% CI 1.15-4.52, p<0.05), perceiving there to be an occupational risk of exposure to HBV (AOR 2.86, 95% CI 1.06-7.70, p<0.001), and increasing HBVc knowledge (AOR 2.68, 95% CI 1.83-3.92, p<0.001) were independent predictors of full-dose HBVc in FRSC members, Kaduna Sector Command. Conclusions: HBVc coverage and knowledge are poor among FRSC members, Kaduna Sector Command. Educational intervention, geared towards improving FRSC members’ knowledge of HBVc and perception of risk of occupational exposure to HBV, is recommended for these vulnerable public safety workers. Such enlightenment could be a cheap and easy way of improving HBVc coverage in the study population.
Data Owner:
University of Tennessee, Knoxville
Background: With data becoming a centerpiece of modern scientific discovery, data sharing by scientists is now a crucial element of scientific progress. This article aims to provide an in-depth examination of the practices and perceptions of data management, including data storage, data sharing, and data use and reuse by scientists around the world. Methods: The Usability and Assessment Working Group of DataONE, an NSF-funded environmental cyberinfrastructure project, distributed a survey to a multinational and multidisciplinary sample of scientific researchers in a two-waves approach in 2017-2018. We focused our analysis on examining the differences across age groups, sub-disciplines of science, and sectors of employment. Findings: Most respondents displayed what we describe as high and moderate risk data practices by storing their data on their personal computer, departmental servers or USB drives. Respondents appeared to be satisfied with short-term storage solutions; however, only half of them are satisfied with available mechanisms for storing data beyond the life of the process. Data sharing and data reuse were viewed positively: over 85% of respondents admitted they would be willing to share their data with others and said they would use data collected by others if it could be easily accessed. A vast majority of respondents felt that the lack of access to data generated by other researchers or institutions was a major impediment to progress in science at large, yet only about a half thought that it restricted their own ability to answer scientific questions. Although attitudes towards data sharing and data use and reuse are mostly positive, practice does not always support data storage, sharing, and future reuse. Assistance through data managers or data librarians, readily available data repositories for both long-term and short-term storage, and educational programs for both awareness and to help engender good data practices are clearly needed.
Data Owner:
St. Luke's Hospital
Objective Surgical informed consent is essential prior to caesarean section, but potentially compromised by insufficient communication. We assessed the association between a multi-component intervention and women's recollection of information pertaining to informed consent for caesarean section in a low-resource setting, thereby contributing to respectful maternity care. Design Pre-post implementation survey, conducted from January to June 2018, surveying women prior to discharge. Setting Rural 150-bed mission hospital in Southern Malawi. Participants A total of 160 postoperative women were included: 80 pre- and 80 post-implementation. Intervention Based on observed deficiencies and input from local stakeholders a multi-component intervention was developed, consisting of a standardised checklist, wall poster with a six-step guide and on-the-job communication training for health workers. Primary and secondary outcome measures Individual components of informed consent were: indication, explanation of procedure, common complications, implications for future pregnancies and verbal enquiry of consent, which were compared pre- and post-intervention using χ2 test. Generalized linear models were used to analyse incompleteness scores and recollection of the informed consent process. Results The proportion of women who recollected being informed about procedure-related risks increased from 25/80 to 47/80 (OR 3.13 [95% Confidence Interval 1.64-6.00]). Recollection of an explanation of the procedure changed from 44/80 to 55/80 (OR 1.80[0.94-3.44]), implications for future pregnancy from 25/80 to 47/80 (1.69[0.89-3.20]) and of consent enquiry from 67/80 to 73/80 (OR 2.02 [0.73-5.37]). After controlling for other variables, incompleteness scores post-intervention were 26% lower (Exp(β)=0.74; 95% CI 0.57 – 0.96). Recollection of common complications increased by 29% (Exp(β)=1.29; 95% CI 1.01 – 1.64). Recollection of the correct indication did not differ significantly. Conclusion Recollection of informed consent for caesarean section changed significantly in the post-intervention group. Obtaining informed consent for caesarean section is one of the essential components of respectful maternity care.
Data Owner:
Albert Einstein Israelite Hospital
In most emergency situations or severe illness, patients are unable to consent for clinical trial enrollment. In such circumstances, the decision about whether to participate in a scientific study or not is made by a legally designated representative.
Data Owner:
University of California, Irvine
Technology-mediated interventions to promote physical activity are growing in popularity and appear to be effective for supporting continued adherence for some people. Some of this efficacy may be related to the cultivation of motivation that is self-determined (i.e., autonomous), which is posited to arise from the satisfaction of three basic psychological needs: competence, relatedness, and autonomy. The Peloton Instructor Needs-Supportive Coaching (PINC) tool was used to code 80 Peloton cycling classes across 4 different class types (Beginner, Power Zone, Groove, and High-Intensity Interval Training) to quantify the frequency of needs-supportive and needs-indifferent coaching within a class. We also provide an example of a pilot study using the tool to test the association between needs-supportive coaching and intrinsic motivation. This dataset provides the valid survey data used in the pilot study analysis to test the association between needs-supportive coaching and intrinsic motivation.
Data Owner:
Dryad
This dataset represents a comprehensive exploration of ecosystem restoration practices and their impacts on both ecological and human wellbeing indicators. Traditionally, ecosystem restoration efforts have focused on ecological benchmarks such as water and habitat quality, species abundance, and vegetation cover. However, there is an increasing recognition of the interplay between restoration and human communities, evidenced by positive socio-ecological connections like property value, natural hazard mitigation, recreation opportunities, and overall happiness. With the United Nations declaring 2021-2030 as the "Decade of Ecosystem Restoration" and a push for more socio-ecological goals in restoration, this dataset delves into the degree to which restoration practitioners consider human wellbeing. It is based on a case study of the Great Lakes Restoration Initiative (GLRI), a federally funded program that has awarded over $3.5 billion to 5,300 projects. A total of 1,574 GLRI projects were surveyed, with 437 responses received, revealing that almost half of these projects set human wellbeing goals, and more than 70% believed they achieved them. In comparison, 90% of project managers believed they met their ecological goals. This dataset highlights the documented perceptions of positive impacts on both people and nature, suggesting that restoration efforts often go beyond traditional indicators. As such, it advocates for the adoption of a socio-ecological perspective in ecosystem restoration programs to comprehensively document the full extent of restoration outcomes. The data collection process included a survey methodology, and the dataset provides insights into project design, implementation, and success measurements. The data was collected between November 2020 and March 2021, with a maximum of three contact attempts for each project. It offers a unique perspective on the relationship between ecosystem restoration and human wellbeing, emphasizing the importance of capturing the often "unseen" benefits of these projects.
Data Owner:
The Caucasus Research Resource Centers (CRRC)
The survey intended collecting up-to-date data on the perceptions of the population in Georgia regarding the ongoing protests, as well as broader political and social situation in the country.